I have Granulomatosis with Polyangitis (GPA). This is where I'm writing about living with being very very sick.
Friday, October 23, 2015
Check Out My Sick Bruise
This is the bruise on my arm from the IV I had Wednesday. It might look like my arm is just dirty, but it actually is a long, thin, bruise.
Bruises from needles is something I got very used to the first time I was sick. I had 300 million blood tests and 4 times out of five there would be a bruise. Once or twice the phlebotomist would make a real mess of sticking a needle in me - they would dig around for minutes trying to strike a vein. It was uncomfortable when it happened, but the bruising afterwards was incredible. The worst time was a draw from the crook of my elbow and, well, you know how messed up Jared Leto's arm was by the end of Requiem for a Dream?
Ok, it wasn't actually that bad. But I did have lots of bruises from blood tests and from infusions of various kinds. That's just kind of what happens.
I don't remember having a bruise quite like this one though. I don't know if you can really see it, but right at the very top there's a little red dot at the top of the bruise. That's where the IV actually went in my arm. So the rest of the bruise actually follows my vein. I think it's fascinating. And, like I said, I don't remember having a bruise quite like it before.
I dug this drawing up for comparison. This is something I drew in high school, probably when I was home being very sick. I don't remember if I was in an art class at the time... actually, I guess if I think about it, I can confidently say that I was not. After doing my time in the hospital I dropped all but 3 of my classes. So by the time I drew this, I was just taking AP Calc, Advanced Creative Writing and... something else.
Anyway, it's a self portrait of my hand. I was kind of obsessively painting my nails at the time, and they were really long because a) I wasn't well enough for any kind of activity that would cause a person to break a nail and b) prednisone seems to make them grow fast and strong for some reason. I think that bruise was from an IV, but I can't be sure.
I also used to play connect the dots on the back of my hands with all the scars from various needles.
I like these bruises and scars. Granulomatosis with Polyangitis is one of those illnesses that is pretty much completely invisible. Having those marks, and even, I guess my weird collapsed nose, make me feel... validated? They remind me that I really am very very sick, that my body is not functioning at full capacity and that I really truly can't do things; I'm not just being incredibly lazy. Strangely enough, this is a reminder that I really do need.
The thing is, when I spend the day doing basically nothing, I feel pretty normal. Granted, I can't breathe very well, but I've gotten pretty used to that. So I have this feeling like I'm ok, so I try to do something - shopping or cleaning or something else pretty basic - and then I crash like a ton of bricks and remember that I really am very very sick and I can't do things. Then the cycle starts all over: I take it easy until I start to think that I can get stuff done, and I push myself just a little, and I crash. And then you get in to the whole balancing act where I try to do just enough that I won't suffer for days because I decided to clean the kitchen, but some days I have a kitchen cleanings worth of spoons, and some days I have just enough spoons to take a shower but drying my hair is beyond me.
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